The Breast Cancer Aotearoa Coalition makes submissions to Government, DHBs, PHARMAC and health organisations with the aim of improving the access to, and quality of, treatment for women with breast cancer.
On this page you can view the recent submissions we've made.
- Following the funding of Perjeta by PHARMAC in late 2016, BCAC and the Breast Cancer Foundation NZ made a joint submission to PHARMAC early this year to request extending the funding of Perjeta to include all those being treated with Herceptin (trastuzumab) for metastatic HER2 positive breast cancer. This request was not declined outright but PHARMAC stated they require more clinical trial evidence before extending the funding. Read the submission here.
- In December 2016, BCAC met with the Minister of Health and presented a briefing which made a case for increased medicines funding and outlined other areas of concern. Read the full briefing here.
- In November 2016, BCAC made a submission to PHARMAC applauding their decision to fund pertuzumab for HER2+ metastatic breast cancer patients. However, there are some aspects of the proposed Special Authority criteria for access to pertuzumab that we have serious concerns about. Read our submission here.
- In October 2016, BCAC provided feedback to PHARMAC’s consultation on the implementation of Trans Pacific Partnership (TPP) provisions and other amendments to application Processes. Read our feedback here.
- Early in 2016 BCAC made a joint submission with the Breast Cancer Network Australia (BCNA) to the Royal Australian and New Zealand College of Radiologists to suggest that the Faculty amend its position that Intra-Operative Radiation Therapy (IORT) is not supported by sufficient evidence to form a view. Read the full submission here.
- In March 2015, BCAC met with Minister of Health Jonathan Coleman, Associate Minister of Health Peter Dunne and Labour Health spokesperson, Annette King. We highlighted the need for improved access to breast cancer medicines, ensuring the Breast Cancer Standards are implemented, better access to clinical trials, the ability to review the safety and ethical status of clinical trials and the timely introduction of intra-operative radiotherapy. Read the full briefing here.
- In October 2014, BCAC made a submission to PHARMAC asking that funding of pertuzumab (Perjeta) for the treatment of metastatic HER2 positive patients be given a high priority following the outstanding results from the CLEOPATRA study showing its efficacy. Read our letter to PHARMAC here.
- In October 2013, BCAC met with the Minister of Health Tony Ryall, the Associate Minister of Health Jo Goodhew and Labour Health spokesperson, Annette King. We highlighted the need for progress in the following areas: an appropriate body to review the safety of clinical trials involving NZ patients; the need for improvements to lymphoedema care, psychosocial care, subsidised fertility treatment and delayed breast reconstruction; the need for changes to the free breast screening age bands; and funding issues in the public and private sectors. Read our briefing to the Minister of Health here.
- In November 2013, BCAC wrote to the National Health Committee, asking it to recommend introducing intraoperative radiotherapy using Intrabeam for selected patients with breast cancer in the public health system. Read out letter to the National Health Committee here.
- In August 2013, BCAC made a submission to PHARMAC regarding the decision criteria it uses for funding medicines. Read our response to PHARMAC's Decision Criteria Consultation here.
- In April, BCAC wrote in support of a PHARMAC proposal to consider funding Pegfilgrastim to prevent neutropenia in patients undergoing chemotherapy.
- In October 2012, BCAC met the Minister of Health Tony Ryall, the Associate Minister of Health Jo Goodhew, Health Select Committee member Dr Jackie Blue, Labour Health spokesperson Maryan Street and Green Health Spokesperson Kevin Hague to deliver a strong message about the needs of New Zealanders with breast cancer. Read more about what we told the politicians here.
- In August 2012, BCAC commented on a proposal by the Government' sdrug-buying agency, PHARMAC, to create a nationally consistent list of medicines which it would fund for all District Health Boards. Read more about what BCAC had to say on the suggested schedule of pharmaceuticals here.
- In June 2012, BCAC commented on a proposal by the Government's drug buying agency, PHARMAC, to change it's operating policies and procedures. You can read BCAC's submission on Pharmac's operating policies and procedures here.