Lymphoedema patient register
The Australasian Lymphology Association has a grant from IBM to create a patient registry in New Zealand and Australia of those who have lymphoedema. This is a wonderful opportunity to gather information about the extent of the problem, what is offered for treatment and how it affects people’s lives. With this information they can better understand the cost of poorly managed lymphoedema with a goal of having better preventative strategies. They will be in a strong position to lobby government for more equitable services throughout New Zealand with this information.
To register you simply click on the link below and you will then be asked to complete a short survey. The survey can be completed online or a paper version printed off from the website for those who don’t have access to a computer.
28 April 2015