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Ideas for staying positive in tough times - Metavivors share their wisdom

One of the biggest challenges in any diagnosis, and treatment journey, is finding positivity during very worrying and difficult times.

Sat, 08/31/2024 - 11:29
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Advocates get political to drive reform

BCAC recently joined over twenty groups representing New Zealanders with a wide range of diseases to visit Wellington under the Patient Voice Aotearoa (PVA) banner. We met Hon. Dr Ayesha Verrall, Labour’s health spokesperson and former Health Minister, and visited Pharmac to hear Hon. David Seymour, Associate Health Minister (Pharmac) present his Letter of Expectation to Hon. Paula Bennett, Pharmac’s recently appointed Board Chair.   

Sat, 07/20/2024 - 12:25
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Keytruda free for advanced triple negative breast cancer

Good news for New Zealanders with advanced triple negative breast cancer. From 1st October 2024 Pharmac will fund Keytruda (pembrolizumab) for those with recurrent or metastatic triple negative breast cancer. Around 15% of all breast cancers, and 16% of metastatic breast cancers, are classified as triple negative.

Wed, 07/17/2024 - 16:34
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Volunteers needed for brain fog study

Difficulty concentrating or forgetfulness experienced by some people during and after breast cancer treatment is known as brain fog or chemo brain. Researchers at Auckland University want to understand whether there are changes in the brain caused by cancer or its treatment. Better understanding will lead to improved management of this condition in future patients. 

Fri, 07/12/2024 - 18:08
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Managing your pain for people living with breast cancer

This webinar is a comprehensive, in-depth presentation by NZ medical experts that answers questions about pain and its management from NZ women with advanced breast cancer. 

‘We recommend this for anyone with questions about pain and pain management. It provides a lot of valuable information about pain in general and pain associated with breast cancer and its treatment.’ says BCAC Chair Libby Burgess. 

Wed, 06/12/2024 - 17:33
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Open Letter to Prime Minister Chistopher Luxon, Minister of Finance Nicola Willis, and the Associate Minister of Health (Pharmac) David Seymour

Dear Prime Minister Christopher Luxon, Minister of Finance Nicola Willis, and Associate Minister of Health (Pharmac) David Seymour.

In August last year a promise was made to fund 13 new cancer medicines via a $280 million ring-fenced fund to Pharmac. According to the National election manifesto, that fund was to start on July 1 this year by reinstating the $5 prescription fee. As you stated Prime Minister, those 13 medicines are "for lung, bowel, kidney, melanoma, and head and…

Tue, 06/04/2024 - 17:12
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Survey on chemotherapy experience aims to understand communication and side-effects

Have you undergone chemotherapy for cancer for the first time in the last twelve months? Researchers from The University of Sydney are interested in your experience. Participants over 18 are wanted to complete a 20-25 minute online survey.

Sun, 05/26/2024 - 11:19
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Strong breast cancer presence at Valuing Life Summit

Breast cancer organisations turned out in force at Valuing Life, a Parliamentary Medicines Access Summit. We all did our best to make the case for broader, faster access to modern medicines to improve the lives of breast cancer patients. 

Sun, 05/05/2024 - 16:29
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Kisqali free for HR+ HER2- advanced breast cancer

Good news for New Zealanders with advanced hormone receptor positive HER2 negative breast cancer. From 1st July Pharmac will fund Kisqali (ribociclib) for those who haven’t previously had funded access to Ibrance (palbociclib). BCAC asked Novartis to provide Kisqali free to patients until Pharmac funding kicks in and they agreed. So, if you’re starting or continuing on Kisqali you won’t have to pay medicine costs from now onwards.

Wed, 04/24/2024 - 12:43
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Māori cancer researcher award goes to BCAC committee member

Congratulations to BCAC Committee member Maria Marama, who has just received a Masters Scholarship from the Māori Cancer Researcher Awards scheme run by the Cancer Society (Te Kāhui Matepukupuku o Aotearoa) and Hei Āhuru Mōwai (Māori Cancer Leadership Aotearoa). 

Sun, 03/10/2024 - 16:07
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About Us

The Breast Cancer Aotearoa Coalition (BCAC) provides a united voice for NZ women who are experiencing breast cancer. We support, inform and represent those with breast cancer so they can make informed choices about their treatment and care. Formed in 2004, BCAC is a registered charity run by breast cancer survivors. If you would like to join us to help improve breast cancer treatment and care in Aotearoa, New Zealand please email us to find out more. 

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